I began this blog a year ago & called it 'my journey to wellness'. It still is - but its so much more than that now that I have 'come out of the closet' so to speak. Battling with fertility issues. Doing our darndest to overcome them any way possible. Seeking support of and offering support to same.
Wednesday, August 17, 2011
Introducing Dr. Cutie
I'll admit it. I have a bit of a thing for nerds.
Remember Dr. Green from the original ER cast? Ummm....YUMMY! Forget George Clooney! Anthony Edwards made my toes curl - and still sends things aflutter in me when I think of him. Dr. Sheldon Cooper from the Big Bang Theory? Yes please!!!
I know its kind of strange.....but that's just me. My husband chuckles a little uncomfortably when I gush over a quirky, cute nerd on TV. He worries that makes him a nerd too, since of course I find hubby unbearably attractive. I reassure him that although he does have some nerd-ish elements (which I do find strangely hot), he's a 6'4" manly man rock star truck guy! (grunt!)
So.... I think I might have a wee bit of a crush on my new family Doctor.
AWKWARD!
He is young as far as doctors go. Right about my age I would guess. Hubby came to the appointment with me and Dr. Cutie entered and I could see hubby's reaction - he gave me a little knowing smirk and a shake of the head. Sigh - he knows me too well!
Dr. Cutie introduced himself and said "So you're here to discuss fertility issues. Whats been happening so far?".
I pulled out my files (I caught a slight flinch of surprise from him at the amount of well organized paper I pulled out!). I explained that I was on CD 54 (now 55...but who's counting), that we'd begun trying January 2010, that my cycles could have been timed with a stopwatch before that but after we began trying I stopped having cycles for 4 months. I explained the last year and a half of super irregular cycles, acupuncture, naturopathy (he did not blink an eye at this - I felt no 'judgement' from him), chiropractic, supplementation, etc. Explained the night sweats since I was 30 that have stopped since doing the naturopathy & acupuncture, but that I do still get 'waves' of heat. I don't feel that they are really 'hot flashes' as they feel milder than what other women describe (although, come to think of it, I also have quite a high pain threshold, so maybe my judgement is out of whack there....maybe what I experience as mild is really quite intense for other women...).
When I proceeded to the part about going to the specialist in May, I said... "I went to an appointment with.....and I'm sorry if you know her, but.....that HORRIBLE woman over at X Clinic." I explained how we were treated and written off and he said that he's not surprised, that its not the first he's heard stories like that.
After telling my tale (during which he took endless notes on his Mac computer....I LOVE nerds!), I explained that I wanted some answers and I wanted him to run a battery of tests on me. I said I want to be checked for PCOS, Ovarian Reserve and check my tubes, and that I want a requisition for day 3 blood work.
He explained, sort of, that you can't really 'test' for PCOS...you just diagnose it if cysts appear consistently, and that you don't really 'treat' it either. He expained every woman gets cysts now & then. That sort of let some wind out of my sails a bit. (Does anyone know, as I forgot to ask, is it still possible to retrieve my own eggs for IVF if I do indeed have PCOS?)
He said that as for the other stuff, we'll run some tests. He gave me the blood work requisition & also added another for mid-cycle. He said since my cycles are so irregular and since I've kept such detailed records, that I should average out the length of my cycles for the last year and a half. Whatever that average # is, divide it by 2 and then add 2. So if the average is 30, then I go for a second round of blood work on day 17 (15+2). He figures with such irregular cycles that's the best guess we have right now of 2 days after ovulation - although it is a long shot.
Also, he gave me a requisition for 3 ultrasounds - 1 pelvic, 1 trans vaginal, and 1 sonohysterogram which is apparently the one where they check my tubes. The requisition notes say "37F (I think that means 37 yr old female) Fertility workup, oligomenorhea. R/O uterine, tubal pathology" I looked up Ogliomenhorhea if you are interested :
http://en.wikipedia.org/wiki/Oligomenorrhea
He then added something to the effect of "The difficult thing about fertility problems is that we often don't figure out what is happening or why. So we can run these tests and it may just show that everything SHOULD be working just fine. We may never find out why it isn't."
Bummer. Big, Ugly, Smelly, Pimply, Bummer.
But I liked him. So did Hubby. He might even take Hubby on as a patient which would be SO nice. We assured him that he is very low maintenance.
So now, next week, I go get poked and probed...and I am SO hopeful that the pictures will tell us exactly what the problem is and that there is a way to fix it.
Then, once again, I will be relying on my trusty nerds to take care of it all for me!
Hugs.
~SCS
Wednesday, August 3, 2011
CD41 and BFN (again).
POAS today. Last week I would have said for sure that it would be a BFN, so I didn't POAS. Then yesterday....I began to hope...
fuck.
My last cycle was 43 days - so I'm thinking AF will be here soon. Hope so. I'm ready to start on the next round.
Looking forward to the appointment with Dr. Young Guy in 2 weeks. I think those questions (see last post) all need to be answered. I'm still open to receiving thoughts about further questions to raise to him if anyone out there can think of any for me to ask.
I've met with the admissions person at the school I'm considering. It all looks good. I just have to figure out the balance so that we don't starve to death while I'm in school. I've put an ad up to give voice lessons - hopefully there are some takers. I'm also hoping my current employer will be supportive and allow me to work part time whenever possible. If anyone out there needs a freelance art project done (computer or hand illustration, realistic or cartoon (any style), photography, logos & business card design, portraits, etc....) please shoot me a comment and I will send you the website link for my husband's business.
I confessed our IF struggles to one of my very best girlfriends this past week. We talked a long time she was of course wonderful. Egg donation came up. She said that she knows a woman who donated eggs and when she (my friend) heard about it she thought to herself (this was years ago) "who would I do that for if it ever came to that?". She said that I was one of the 3 people she would do it for. She said she knows that we're not at that place yet and that she knows we will get pregnant ourselves, but that if it came down to it, she would do it, if she were a good candidate. I thanked her, from the bottom of my heart. I'm not sure how I feel about it though.
I told my mother about it. My mom thinks its great (if it came to that) since my friend and I are such similar people - very alike in our values, likes, dislikes & talents. I said "But I don't know if I could get over the thought that it would be my husband and my best friend's baby". I don't know if I would hurt to my core every time I looked at "my" child. I just don't know.
I hope what I've said is not being insensitive to anyone out there who has gone the donor egg route. I don't want to hurt anyone's feelings. If it comes down to that being our only option - then I will do it - and I respect and admire anyone who has had the strength to do it. I'm just new to the idea that this might be a route that we will have to take. I'm still trying to emotionally grasp that I may not be able to have a child of my own genetics. I hope I do not offend.
Geez....this whole thing sucks.
FUCKFUCKFUCKFUCKFUCK!!!!!!!!!!!!!!!!!!!!
Monday, July 4, 2011
Time to just not think about it
Sadly - its one of those things...you TRY not to think about it...you just think about it more.
I had a wonderful weekend away with hubby in our nearby metropolitan area. It was glorious. We stayed with friends, we ate great food, we saw a ball game & toured a beautiful old district of the city which was reopened a few years ago and now is full of galleries and artisans and a WONDERFUL chocolate shop. I had their specialty - an intense drink of spicy hot chocolate, thick and rich and sexy. I also sampled some of their house made gelato...blueberry basil (yes...it was brilliant!), and lemon sour cream (bliss!). We also went to the 'cool' shopping strip and I got some nice bath things (normally I make my own as I have such sensitive skin that I react to most commercial cosmetics - but this place uses all natural stuff - the same bases that I use really - but they do it SUPER PRETTY!), a beautiful turqoise pendant that I can't stop admiring, and PINK CONVERSE ALL STAR HI-TOPS for my 3 year old neice! Oh, she is going to LOVE them!
It was so incredibly restorative. Just what my soul needed. Now I'm back home and rockin' the program with a positive attitude.
I haven't really had much CM in the last year or so....but the last couple of days I have had a wee bit. Its CD 11 right now. So based on what I've read thats a pretty good sign. I guess I have to watch for EWCM in the coming days & that would be a good indicator that I might actually ovulate this cycle! Wouldn't THAT be something! I truly hope that is the only thing that is preventing us from achieving pregnancy. Hubby's swimmers are good and I have been pregnant before - 2 miscarriages, 7 years ago. My period came back after being gone for months. Maybe my ovulation can come back too!
I really hope that I can stay in this positive place for the next few months. My body seems to be responding well to it! My mantra for the next several days:
"My body is preparing for pregnancy. It is about to release a strong, healthy egg which will become fertilized, implant in a healthy uterine lining and settle itself in for a 9 month stay!"
(keep repeating until it happens)
Thursday, June 30, 2011
A Wonderful Hubby, More Dreams and Less Reading
I have spent the last 2 weeks in a cyclone of emotion and I've dragged my poor husband through the wringer with me.
I'm worried that I won't have a child. I need to be focused on the positive right now. Its early in my IF journey, really and we don't even KNOW a lot of the clinical stuff yet. I haven't even had a day 3 blood analysis, to determine whether my FSH really is high. And right now the decision is not to do one. Not yet, anyway. Right now I'm supposed to be bolstering my wellness. Focusing on my body, mind and spirit and becoming as healthy, vibrant and vital as I can make myself. But there is a time limit to this...I know...and it looms and depresses and worries me.
The reading I've been doing is stressing me out. Its making me think about all the challenges that I might have to face & I don't know if I can do it. I love the blogs I've found and I want to know more about these amazing women and understand the strength that they have so that I may have it too. But I think I have to stop. Or slow down, anyway. As I read, I feel my heart becoming heavy, my chest closing in, and my throat developing a hard lump. I've got so little to do at work (a frustration in itself, which I may get to in another post) these days that I sit and read and get more and more tense throughout the day. Then by the time I get home I'm walking a stress tightrope that I know I'm going to fall off of. My poor husband gets the brunt of it. He works from home and he is working very very hard at launching his own business...but I come home and there are dishes, laundry, crumbs on the counter, vacuuming, cat litter, etc...and that's all it takes to send me over the edge. I crash & bang my way through the house. I can imagine what a jerk I look like.
The back room that I had been doing my meditation in was junky and full of boxes & just disorganized. It's been our catch all room for anything we don't really know what to do with or just haven't gotten to. The other day I came home and all the boxes were cleared away. 2 tables were set in the corners draped with pretty fabric, with little lamps set on them. An incense burner and 2 calming scents of incense were set out. A couple of nice cushions on the floor and a beautiful new soft blanket. Some books on the Tao, Meditation, Poetry placed carefully on the shelves. My old ghetto blaster set up with my meditation CD in it. My husband is my favorite person in the whole world. I don't deserve him.
Yesterday I went to my naturopath for an acupuncture appointment. My food sensitivity tests had come back & it appears that I'm in pretty good shape food wise. My body can comfortably assimilate just about anything. The only thing I have to steer clear of is Eggs. I get a mild reaction to them - so I'm not supposed to have them. If they are in something I buy, no big deal, but I shouldn't have 'true' eggs, and if I'm baking I should use an egg replacer. So I'm all good in that area. But I just broke down in her office & wept. I know its stress. That's exactly what it is. And I know I'm holding things in which just makes it build. We didn't get to acupuncture before her next client showed who was her last client of the day. She told me to come back after her last appointment and she would stay and give me a treatment. In the reception room I paid the receptionist & told her to charge me for 2 appointments as I'd be coming back. So I paid & came back & got my treatment. Then she told me she wasn't charging me for the earlier time, so she'd applied a credit to my account. That was sweet. I needed that kindness.
I got home and had a great talk with Hubby & apologized for being like the 3 faces of Eve recently. He understood. He just wants me to relax. He is so confident that this will happen for us. He knows we will have 2 children. I will be thrilled with just one.
And the dreams....well, I had another one last night. Strange how the dreams have resurfaced after so long an absence. I dreamed that my work gave me a cheque for $75,000.00. Not sure why -they just did. They were giving everyone big cheques. Actually everyone was getting 2 cheques but I only got one, and they thought I would be upset about that but I didn't care because, hey, its $75,000.00 - why complain! Maybe its a lesson to make the most of the hand you are dealt....to be happy with what is given you instead of focusing on what is not.
So, I will still read your blogs & slowly get to know you all...but only a little at a time...only what my heart and head can handle at once. I will continue to write my own...I find it therapeutic. I hope you will find something of value in it for you, as well.
Peace
~SCS
Thursday, June 23, 2011
BFN & CD1 All Before 10am.
I woke at 5am to take my BBT as usual. 38.3. Thats lower than normal & a big drop from the past couple of weeks. I hit 'snooze' and took it again about 20 minutes later. 38.8. Thats closer to normal for me. I got up and got my little pee cup & did my thing. BFN. At least this time I didn't trick myself into believing I was pregnant. I kind of just figured it was another crappy cycle.
Off to the gym. Work out my frustrations with my trainer. Felt good.
About an hour ago AF arrived.
Big morning. At least I have new cycle to have hope for.
I did talk to my naturopath about CoQ10 & she agreed it wouldn't hurt and wouldn't interact with anything I'm currently taking. So I'll be picking up some of that today.
I went to the bookstore to look for "The Infertility Cure". They didn't have it, but I got a book called "Fully Fertile" which looks interesting. Particularly its got a lot of fertility Yoga poses which I was looking to find anyway. I also got a beginner meditation book and a meditation CD. I HAVE to calm my mind.
My big challenge is figuring out how to slow my life down so that my body can build itself up rather than deplete itself. Its going to take some time....and there will be people who will be unhappy with it. Thats always hard for me. I am a 'pleaser'.
I get to spend some time with my 3 year old neice tonight. She ALWAYS brings me such overwhelming joy. I'll feel better then.
Wednesday, June 15, 2011
Playing Catch Up While the Clock is Ticking
As opposed to a novel, which I'm not prepared to write unless Harper Collins or Random House are involved, how-be I sum up?
- We have successfully converted to organic in everything that we can get that comes organic - food wise.
- We are still in the process of converting over cosmetic/toiletry items and household cleaners to Organic, Green, or Homemade. We're probably about 70% there.
- We joined a gym several months ago and invested in Personal Trainers so we learn how to exercise and DON'T hurt ourselves. (Hubby has a pretty severe back injury and that limits his progress because of moves he simply cannot do. I have lost 5 lbs of fat and gained 5 lbs of muscle in 5 months.)
- I see my Naturopath regularly & have built a good relationship with her. I receive treatment in acupuncture and TCM (Traditional Chinese Medicine). I will go into more detail about this later as its a big part of the direction journey has taken.
- Progress and enthusiasm has been slowed by an extremely difficult year. Hubby's Grandfather passed last May (2010), my father passed in August, my Grandmother in November, and my Uncle just a few weeks ago.
These are sort of "the big rocks" that have occurred since I last wrote - with the exception of the one all consuming, all encompassing reason for all of it......we are trying to have a child...have been for 16 months....and have not been able to conceive. I didn't bring it up before, perhaps hoping that simple changes in diet & lifestyle would result in a pregnancy. They didn't, haven't, and its time to go deeper on so many levels.
The Fertility Summary looks like this
- I had 2 miscarriages in a previous relationship. One at 9 weeks, one at 14. These occurred in 2004.
- Regular cycles 98% of the time since age 13.
- In January 2010 Hubby and I go to Cuba for our 'last hurrah'. We are going to start trying when we get home.
- Period late in Feb 2010. Take pregnancy test - negative. A week later still no period. Take another test - negative. Call MD - sends me for lab pregnancy test - negative. Diagnosis - just a late cycle.
- March - still no period, but almost daily dark sparse spotting.
- April - same as above. Book appointment with MD. Sends me for blood work another lab pregnancy test - negative. Blood work indicates Anaemia. Thyroid shows normal. Diagnosis - just wait it out.
- April - see Naturopath (ND) for the first time. She takes me off dairy, orders more specific thyroid tests, puts me on a gentle thyroid support supplement, begins TCM treatment with herbs, and does acupuncture.
- May - a period! Wow, what a period! Hits me like a MAC Truck & lasts 7 days - but its a period! ND has me start recording BBT & we continue with treatment.
- June, July, August, Sept, Oct, Nov, Dec....periods normalize. My BBT is lower than normal (taken at 5am its in the 35 degree area). I get night sweats (not every night, but pretty regularly). No real 'spike' or ovulation indicators being picked up. ND feels yin/yang are way out of balance & we need to focus on finding my balance.
- January 2011 - irregular periods begin again. Every 6 or so weeks in general, occasional spotting. CM (cervical mucous) almost non-existent and no EWCM (egg white CM). The toll of the difficult year is starting to be felt. I begin training at the gym which offers some relief. It has now been a year, so ND advises to see MD as they will take more action now that we have been trying for a year unsuccessfully.
- MD seems enthusiastic about helping/discovering if there are issues. Orders thorough blood tests. I get a call a couple of days later from the Md's office asking if I'm experiencing 'black urine' and that if I am I need to go to the emergency room. I advise them that I am not experiencing anything of the sort and that if I was I would have already been to the emergency room! Apparently my 'creatine' level was high. Its a muscle enzyme. I advise them I have been working out. They advised that can happen, but I needed to stop working out for a week and take the blood test again. I did so. They called back and advised that all was well and the creatine levels were back to normal. I asked "Great - what about everything else?". "What do you mean?" they asked. "The blood tests were originally ordered because we're trying to conceive and can't" I replied. "Oh - I'll have to check with the doctor and get back to you". OK.
- A few days later I get a call from the Md's office. "Your creatine levels are fine, you have nothing more to worry about." "I know that" I said "but what about my fertility concerns?". "What do you mean?" they asked. I repeat the initial reason for the tests once again. "Oh - I'll have to check with the doctor and get back to you". OK...
- A few days later I get a call from the Md's office. "Your creatine levels are fine, you have nothing more to worry about." OK. Enough. I lose it - as gently as I am able to. I explain once again the whole point of it all. I explain how this back & forth & their inability to see how it affects me, is affecting me. I suggest that I may need to be referred to a specialist and that I would like the MD to look at the blood tests re: FERTILITY INDICATORS and take appropriate action. I advise I do not want to wait as the chances are that a specialist's waiting list is going to be very long, so I want to get on it right away! The receptionist says she understands, will speak with the doctor and get back to me by the end of the day.
- She calls back & says that if I want to go to a fertility specialist I need to arrange it myself - there is no referral. (???). OK, fine. I check the Internet and there is a clinic in my town that is apparently one of the best in Canada. Their site looks good, seems very compassionate - sounds like just what we need. You must be referred by a family doctor - there is a form to be completed. (BTW - my MD is retiring in July & a new MD is taking over his practice. Can't wait.). I print off the referral form & fax it to my Md's office with a clear letter advising them of what they need to do and that I need it done by the end of the week. They do it.
- I get a letter from the clinic and I have an appointment booked late August (it is March or so at this time). I fill in the masses of forms they send along. In the meantime I continue with ND, Acupuncture, etc.
- May - I get a call from clinic they have a cancellation & can take me that week. YAY! We gather all of our info & I have a whole file ready to go over with the doctor to show my cycles, temperatures, discharge, etc etc etc. I'm thinking I'm so prepared she will be impressed and we'll get right to the bottom of what is happening.
- We go into appointment, nurse weighs me, takes BP, etc. Hubby stays in waiting room & pays for appt & fills out more forms. I come back into waiting room to wait for doctor.
- We get called in. Doctor introduces herself. She is barely intelligible - muttering under her breath, slurring & appears as though she could drop off to sleep at any moment. I think she either was up all night in a delivery or something, or else she must be drunk.
- She asks a few basic questions. Asks "whats this naturopath doing?". I proudly open up my folder with all my BBT charts, all testing results, ND program info. She sort of 'huffs' and says 'well you can stop doing that now its probably just causing you more stress'. She asks - "has your doctor spoken to you about FSH?". I said no - but that my ND has & did tell me that it was high on the blood test results and said she is proceeding in a manner trying to get my ovaries to start 'listening'. I said I really didn't know too much about it beyond that. She said yes, my FSH is quite high (37 at day 13)according to the tests my MD ordered.
- She went on to explain the clinic's process & that on the first day of my next period I am to call them. They will set an appointment for me to come in and have blood drawn on day 3. The rest of the process is a blur now as a result of the information that followed. She took us back into a room with the nurse & said the nurse will walk you through the process in more detail & give you the papers that tell you what to do. Then, as she's leaving the room, she turns to me and says "and you know that if the FSH comes back high after the first blood test then we stop everything there? There will be no further treatment.".
- ................................................................................................what?.......................................
- I brace. The nurse looks at me. I sit. She asks "is this new information for you?" "yes". "Yes, I'm sorry, but if the FSH is high then the only alternative is to look for an egg donor, and we are not legally able to assist you in that process."
- She goes through some sort of info. Hubby handles it. I am somewhere else....in shock.
- I spend several days in shock. I read up on FSH on the internet. I read up on egg donation (though I don't want to go there. I want MY child. Mine & my husbands.). I learn maybe more than I want to know. I also learn that many clinics are thought to be too quick to write off women with high FSH and that they don't want to take them on as patients because they aren't good for their stats. I learn FSH at 37 is astoundingly high.
- I go back to ND. Hubby comes along. She listens. She is sorry we had that experience. She explains that in TCM there is no real acknowledgement of FSH. She views it as an indicator that for some reason the ovaries are not listening. From her perspective we need to wake them up. She recommends that we continue with the acupuncture & herbs, but take a more aggressive approach & try to create an environment of total balance and health in my body, giving the ovaries their best opportunity to do their jobs. This sounds reasonable to me.
So at this point, I am awaiting the results of a food sensitivity test, so that we can do a targeted cleanse & create a specific diet. I am working out 3x a week, taking my herbs, drinking herbal teas, no caffeine or alcohol, getting acupuncture weekly, taking my BBT at 5 every morning, watching CM & praying for EWCM & an on cycle temperature spike, making sure I get good sleep, and trying to figure out 'meditation' of some kind to bring myself 'down'. I am running hot - too much yang. Need to bring in some yin & find my balance.
I feel really good right now. Better than I ever have - physically anyway I'm the strongest I've been in my life. Emotionally......that's another story. I'm up and down. I'm 37. 38 in the fall. I don't want to wait. I don't want to delay. If I need to get an egg donor, I want to know and just get on with the process. But there is no guarantee in that that I will even get pregnant with that process. Its just IVF with someone else's eggs. Adoption is such a long, painful, expensive process too. Many times I feel lost, helpless and deeply, deeply sad. Others I feel optimistic & hopeful.
Now you, dear reader (though I have none at this point & maybe won't ever), are caught up. And the clock ticks on...
